In March of 2017, my youngest child was diagnosed with autism. It didn’t really come as a shock… We were pretty much expecting it.
He and his identical twin made their grand entrance into this world bit too early. There was no particular reason for for their untimely arrival.
My guess is that they heard all the commotion being made by their older brothers and sister. (Yes you counted correctly. 5 kids.)
Ever since their 6 week NICU stay, the twins presented with various delays – mostly in their language development. So this autism diagnosis was one more stop on our journey into uncharted waters.
Back to the reason for this blog…
Since J’s diagnosis, I’ve become increasingly frustrated. I’m frustrated that when his doctor told me he “had autism,” he gave me a pamphlet and TRIED to send me on my way. (He was not successful.)
I’m frustrated by the numerous road blocks I face on a daily basis trying to get him services. I’m frustrated that I keep having to fill out milestone charts that don’t apply to my kid.
I’m frustrated that Facebook has directed every autism-mom-related advertisement to my news feed, as if that’s all I’m interested in anymore.
And if, for some odd reason, I don’t want to wear a puzzle bracelet around my wrist, or display his diagnosis on my t-shirt, I am somehow doing something wrong.
The list of frustrations goes on.
So instead of becoming angry, bitter, and depressed, I decided to start this blog… a place I can vent, share our successes, and maybe even reach others who are frustrated for various reasons.
This blog will NOT be politically correct. And it will NOT be strictly about autism. It WILL be about peoplism, momism, wifism, daughterism, friendism, and various other human conditions.
Enjoy!
Follow our journey on the Not an Autism Mom Facebook page!
44 replies to "One Frustrated Momma- The Reason For This Blog"
I’ll be reading !!
Thank you!
Thank You!
Love this! 💕
Thank you!!!
I’m reading!
Thank you!
I am glad that in the very “soft” society we live in, someone is not excepting the norm.
Thank you!
I will read and support.
Thank you!
I hadn’t heard about the “official ” diagnosis. I think this blog is a great idea for both you and others. You all are in my thoughts and prayers.
Thank you Cheryl! â¤
Thinking of all of you. Hope to catch up with you guys this summer.
Thanks Dan! That would be great!
I love you, girl. And I’ll be reading this. You are amazing. That is all.
Thanks Christen. I love you more! â¤
Great blog and great idea I’m sure there are a lot more moms who are going through the same thing
Thank you! I’m sure you’re right. That’s one of the reasons I wrote this. â¤
Your boys are so blessed to have you!
Thanks Kim! Love you! â¤
Love! Thank you for sharing, I can relate to a lot of what you said!
Thank you, Jess. â¤â¤â¤
One of my Grandsons is autistic. With a lot of hard work (by my daughter) he has improved tremendously over the past 18 years. I wish you all the best; never say never; you never know what determination and a bit of elbow grease can attain. 🙂
Thank you for those encouraging words. â¤
I’m glad to see there won’t be a filter here. Too many people have one. I look forward to seeing how your journey with autism plays out. It’s a subject that I’ve been interested in since I saw the movie Son-Shine when I was little.
I also look forward to seeing that it won’t be your only journey.
Thank you! I just started reading your posts. I will be following your journey as well. â¤
Sweet. Let’s rock this world.
Yes. Let’s!
thank you for sharing your story with us, yes the frustration is real, i have an older sibling who suffers fron the same conditon. She’s well into her adult life and has to have a full time care giver as our country has very limited programs in place i only know of the Autism Society which only came on board a fews years ago. i look forward to reading your blogs.
Thank you for reading. I know that is hard for your family, and services are hard to get. Much love to you all. <3
Thank you for posting this. My daughter had recently been diagnosed with Autism. I’m starting to learn the same frustration. On top of that, her father and I are getting divorce. I’ll be following your blog.
I’m sorry you’re going through such a rough time. None of that is easy. Thank you for reading. <3
It’s great, your writing, the honesty, the message. Bravo.
I appreciate that. <3
Nive to meet you <3
Could not relate to this any more! I think that’s why I started too (very , very new blogger). Looking forward to reading your blog.
Thank you! I started only a couple months ago. I look forward to getting to know you. â¤
I look forward to that too.
Hi there, I also identify with the frustration of being labeled as a disability, and nothing more. I am a young woman with CP and I write about the suicidal challenges associated with disability.
I’m Not Your Poster Child – TheWrongsIMustWrite
https://thewrongsimustwrite.wordpress.com/2017/12/03/im-not-your-poster-child/
YIKES! Typo–societal
You almost made me spit out my drink! 😂😂😂 I look forward to reading your blog. â¤
Ha ha ha, Siri is my scapegoat. 😜 Great, please let me know what you think!
Its a frustrating world. I have a nephew witu Autism and then i haven2 boys with ADHD, ODD, and anxiety plus my husband has ADHD. I write a blog as well to vent.